Raised H.B. No. 6920
Session Year 2025

AN ACT CONCERNING PATIENT-SPECIFIC EMERGENCY MEDICAL CARE PROTOCOLS FOR PERSONS WITH A RARE DISEASE OR SPECIAL HEALTH CARE NEEDS.

To improve medical outcomes and safeguard the health and well-being of persons living with a rare disease or special health care needs by requiring emergency medical care providers to follow patient-specific emergency protocols.

Other Bills with Similar Topics

  Diseases 

 

• HB05423 - AN ACT DESIGNATING NEUROFIBROMATOSIS AWARENESS DAY.
• HB05625 - AN ACT CONCERNING AID IN DYING FOR TERMINALLY ILL PATIENTS.
• HB05710 - AN ACT REQUIRING NEWBORN SCREENING FOR DUCHENNE MUSCULAR DYSTROPHY.
• HB05883 - AN ACT CONCERNING IMPLEMENTATION OF THE CENTERS FOR DISEASE CONTROL AND PREVENTION'S WHOLE SCHOOL, WHOLE COMMUNITY, WHOLE CHILD FRAMEWORK.
• HB06919 - AN ACT REQUIRING NEWBORN SCREENING FOR DUCHENNE MUSCULAR DYSTROPHY.
• HB06978 - AN ACT CONCERNING THE DEPARTMENT OF PUBLIC HEALTH'S RECOMMENDATIONS REGARDING VARIOUS REVISIONS TO THE PUBLIC HEALTH STATUTES.
• SB00086 - AN ACT CONCERNING INCOME ELIGIBILITY FOR MEDICAL HARDSHIP PROGRAMS WITH GAS OR ELECTRIC DISTRIBUTION COMPANIES.
• SB00562 - AN ACT CONCERNING FUNDING FOR THE CONNECTICUT RARE DISEASE ADVISORY COUNCIL.
• SB00566 - AN ACT CONCERNING RARE DISEASE PATIENTS.
• SB00801 - AN ACT CONCERNING THE EXPANSION OF THE KATIE BECKETT WAIVER PROGRAM.
• SB00802 - AN ACT CONCERNING A COMPASSIONATE MEDICAID WAIVER PROGRAM FOR CHILDREN WITH RARE, PROGRESSIVE OR NEURODEGENERATIVE DISORDERS.
• SB00813 - AN ACT LIMITING THE USE OF STEP THERAPY FOR PATIENTS WITH DISABLING OR LIFE-THREATENING CHRONIC DISEASES.
• SB01067 - AN ACT CONCERNING PATIENT-SPECIFIC EMERGENCY HEALTH CARE PROTOCOLS FOR PERSONS WITH RARE DISEASES OR SPECIAL HEALTH CARE NEEDS.
• SB01395 - AN ACT ESTABLISHING LICENSURE FOR LONG-TERM ACUTE CARE HOSPITALS AND REQUIRING THE DEPARTMENT OF PUBLIC HEALTH TO STUDY THE DESIGNATION OF LONG-TERM CARE FACILITIES AND CHRONIC DISEASE HOSPITALS.
• SB01537 - AN ACT CONCERNING THE RECOMMENDATIONS OF THE WORKING GROUP TO STUDY NONALCOHOLIC FATTY LIVER DISEASE.

  Emergency medical services 

 

• HB05056 - AN ACT ALLOWING EACH MUNICIPALITY THE OPTION TO ASSIGN ITS OWN PRIMARY SERVICE AREA RESPONDER.
• HB05282 - AN ACT REQUIRING HEALTH INSURANCE COVERAGE FOR EMERGENCY MEDICAL SERVICES.
• HB05741 - AN ACT REQUIRING THE BUILDING AND MAINTENANCE OF ELEVATORS THAT FIT MEDICAL STRETCHERS IN CERTAIN STRUCTURES.
• HB06638 - AN ACT DESIGNATING EMERGENCY MEDICAL SERVICES AND SERVICES PROVIDED BY EMERGENCY MEDICAL TECHNICIANS AS ESSENTIAL SERVICES.
• HB06976 - AN ACT CONCERNING THE DEPARTMENT OF PUBLIC HEALTH'S RECOMMENDATIONS REGARDING HOSPITAL EMERGENCY DEPARTMENT DIVERSION.
• HB07201 - AN ACT CONCERNING A SUPPLEMENTAL PARAMEDIC.
• HB07249 - AN ACT CONCERNING ASSISTED LIVING SERVICES AGENCIES.
• SB00007 - AN ACT CONCERNING PROTECTIONS FOR ACCESS TO HEALTH CARE AND THE EQUITABLE DELIVERY OF HEALTH CARE SERVICES IN THE STATE.
• SB00363 - AN ACT CODIFYING CERTAIN PROVISIONS OF THE EMERGENCY MEDICAL TREATMENT AND ACTIVE LABOR ACT.
• SB00806 - AN ACT EXPANDING MEDICAID COVERAGE FOR TREATMENT OF CERTAIN EMERGENCY MEDICAL CONDITIONS.
• SB01067 - AN ACT CONCERNING PATIENT-SPECIFIC EMERGENCY HEALTH CARE PROTOCOLS FOR PERSONS WITH RARE DISEASES OR SPECIAL HEALTH CARE NEEDS.
• SB01075 - AN ACT REQUIRING REPORTS ON PEACE OFFICER INTERACTIONS WITH INDIVIDUALS EXPERIENCING AN EMERGENCY MEDICAL CONDITION.
• SB01160 - AN ACT CONCERNING EMERGENCY MEDICAL SERVICES RESPONSE PROTOCOLS.
• SB01493 - AN ACT CONCERNING THE UNIFORM INVESTIGATION OF ACCIDENT REPORT AND CERTAIN REPORTS BY PEACE OFFICERS.

  Health care providers 

 

• HB05118 - AN ACT CONCERNING FUNDING FOR IN-PATIENT ADDICTION TREATMENT PROVIDERS THAT COVERS ROOM AND BOARD COSTS.
• HB05139 - AN ACT CONCERNING REGISTRATION FEES FOR DIAGNOSTIC AND THERAPEUTIC X-RAY DEVICES .
• HB05172 - AN ACT PROHIBITING HEALTH CARE PROVIDERS AND CLINICAL LABORATORIES FROM IMPOSING OUT-OF-POCKET EXPENSES BASED ON ESTIMATES OF CHARGES.
• HB05194 - AN ACT PROHIBITING CERTAIN LENDING PRACTICES BY HEALTH CARE PROVIDERS.
• HB05200 - AN ACT REQUIRING WRITTEN NOTICE REGARDING MEDICAL RECORDS.
• HB05278 - AN ACT PROHIBITING HEALTH CARE INSURERS FROM RETROACTIVELY DENYING HEALTH INSURANCE CLAIMS FOR BEHAVIORAL HEALTH AND SUBSTANCE ABUSE SERVICES.
• HB05370 - AN ACT PROHIBITING CERTAIN TREATMENT PRACTICES AND PROMOTING PSYCHOTHERAPY FOR MINORS EXPERIENCING GENDER DYSPHORIA OR INCONGRUENCE.
• HB05569 - AN ACT RESTRICTING SALES OF NITROUS OXIDE TO LICENSED HEALTH CARE PROVIDERS AND REGULATED INDUSTRIAL ENTITIES.
• HB05605 - AN ACT CONCERNING MINOR REVISIONS TO THE WORKERS' COMPENSATION ACT.
• HB05657 - AN ACT CONCERNING ASTHMA ACTION PLANS.
• HB05711 - AN ACT ELIMINATING THE REQUIREMENT FOR A CERTIFICATE OF NEED FOR THE EXPANSION OF HEALTH CARE SERVICES.
• HB05713 - AN ACT CONCERNING INPATIENT DISCHARGE PLANS FOR MINORS.
• HB05804 - AN ACT CONCERNING FUNDING FOR SUICIDE PREVENTION.
• HB06060 - AN ACT CONCERNING HEALTH DATA.
• HB06061 - AN ACT REQUIRING STATE AGENCIES, HEALTH CARE PROVIDERS AND FINANCIAL INSTITUTIONS TO PROVIDE CERTAIN DOCUMENTS TO CONSUMERS IN PAPER FORM.
• HB06088 - AN ACT REQUIRING HEALTH CARE PROVIDERS WHO RECEIVE ANY STATE FUNDING TO ACCEPT CASH PAYMENT FOR SERVICES.
• HB06551 - AN ACT CONCERNING ASSISTED OUTPATIENT TREATMENT FOR PERSONS WITH SEVERE MENTAL ILLNESS.
• HB06560 - AN ACT CONCERNING THE CERTIFICATION AND LICENSURE OF HEALTH CARE PROVIDERS TRAINED IN OTHER COUNTRIES.
• HB06565 - AN ACT REQUIRING CERTAIN HEALTH CARE PROVIDERS TO COMMUNICATE ANY SAFETY PLAN PRESCRIBED TO A MINOR PATIENT UPON DISCHARGE WITH SUCH MINOR PATIENT'S SCHOOL.
• HB06570 - AN ACT PROHIBITING A PRIVATE EQUITY FIRM FROM ACQUIRING, OWNING OR CONTROLLING A HEALTH CARE PROVIDER'S PRACTICE OR HEALTH CARE FACILITY AND REQUIRING THE DISCLOSURE OF A CHANGE IN OWNERSHIP OF SUCH A PRACTICE OR FACILITY.
• HB06593 - AN ACT CONCERNING MENOPAUSE AWARENESS AND EDUCATION.
• HB06608 - AN ACT ESTABLISHING A TASK FORCE TO MAKE RECOMMENDATIONS REGARDING THE DOCUMENTATION REQUIREMENTS FOR MENTAL HEALTH CARE PROVIDERS.
• HB06763 - AN ACT PROHIBITING A HEALTH CARE PROVIDER FROM ADMINISTERING A VACCINE TO A MINOR WITHOUT THE CONSENT OF THE MINOR'S PARENT OR GUARDIAN.
• HB06870 - AN ACT ADDRESSING PATIENTS' PRESCRIPTION DRUG COSTS.
• HB06871 - AN ACT LIMITING OUT-OF-NETWORK HEALTH CARE COSTS.
• HB06873 - AN ACT STRENGTHENING THE REVIEW OF HEALTH CARE ENTITY TRANSACTIONS.
• HB06975 - AN ACT REQUIRING A BIENNIAL STUDY OF PAYMENT PARITY FOR SERVICES UNDER CERTAIN INDIVIDUAL AND GROUP HEALTH INSURANCE POLICIES IN THE STATE AND THE HUSKY HEALTH PROGRAM.
• HB06979 - AN ACT CONCERNING THE DEPARTMENT OF PUBLIC HEALTH'S RECOMMENDATIONS REGARDING PHYSICIAN RECRUITMENT.
• HB07050 - AN ACT CONCERNING THE OFFICE OF HEALTH STRATEGY'S RECOMMENDATIONS REGARDING THE CERTIFICATE OF NEED PROGRAM.
• HB07116 - AN ACT CONCERNING INSURANCE ACCOUNTABILITY AND TRANSPARENCY.
• HB07135 - AN ACT CONCERNING THE PROVISION OF REPRODUCTIVE AND GENDER-AFFIRMING HEALTH CARE SERVICES TO PATIENTS.
• HB07156 - AN ACT CONCERNING THE DEPARTMENT OF DEVELOPMENTAL SERVICES' RECOMMENDATIONS REGARDING VARIOUS REVISIONS TO DEVELOPMENTAL SERVICES STATUTES.
• HB07157 - AN ACT CONCERNING VARIOUS REVISIONS TO THE PUBLIC HEALTH STATUTES.
• HB07158 - AN ACT CONCERNING THE SECURE TRANSMISSION OF MINOR PATIENT SAFETY PLANS TO SCHOOLS BY HEALTH CARE PROVIDERS.
• HB07191 - AN ACT CONCERNING MEDICAID RATE INCREASES, PLANNING AND SUSTAINABILITY.
• HB07213 - AN ACT CONCERNING ACCESS TO REPRODUCTIVE HEALTH CARE.
• HB07287 - AN ACT CONCERNING THE STATE BUDGET FOR THE BIENNIUM ENDING JUNE 30, 2027, AND MAKING APPROPRIATIONS THEREFOR, AND PROVISIONS RELATED TO REVENUE AND OTHER ITEMS IMPLEMENTING THE STATE BUDGET.
• SB00007 - AN ACT CONCERNING PROTECTIONS FOR ACCESS TO HEALTH CARE AND THE EQUITABLE DELIVERY OF HEALTH CARE SERVICES IN THE STATE.
• SB00010 - AN ACT CONCERNING HEALTH INSURANCE AND PATIENT PROTECTION.
• SB00019 - AN ACT ESTABLISHING A STUDENT LOAN REPAYMENT PROGRAM FOR HEALTH CARE PROFESSIONALS WORKING IN THE DEPARTMENT OF CORRECTION.
• SB00195 - AN ACT REQUIRING THAT HEALTH CARRIERS COLLECT OUT-OF-POCKET EXPENSES FOR COVERED BENEFITS.
• SB00251 - AN ACT REQUIRING A STUDY OF THE FEASIBILITY OF REIMBURSING STUDENT LOAN PAYMENTS BY HEALTH CARE PROVIDERS WHO PROVIDE PRO BONO SERVICES AT SCHOOL-BASED HEALTH CLINICS.
• SB00253 - AN ACT ESTABLISHING A LOAN FORGIVENESS PROGRAM FOR HEALTH CARE PROFESSIONALS WHO WORK IN A RURAL OR OTHER UNDERSERVED AREA OR IN A FIELD WITH A WORKFORCE SHORTAGE.
• SB00258 - AN ACT REQUIRING PROVIDERS OF REPRODUCTIVE HEALTH CARE AND COUNSELING TO BE MANDATORY REPORTERS OF CHILD ABUSE AND NEGLECT.
• SB00261 - AN ACT LIMITING THE ABILITY OF PRIVATE EQUITY FIRMS TO PURCHASE HEALTH CARE FACILITIES.
• SB00264 - AN ACT CONCERNING HEALTH CARE SERVICE COST ESTIMATES.
• SB00265 - AN ACT REQUIRING HEALTH CARE PROVIDERS TO NOTIFY PATIENTS REGARDING RECALLED MEDICAL DEVICES.
• SB00440 - AN ACT REQUIRING MEDICAID REIMBURSEMENT RATES NOT TO FALL BELOW NINETY PER CENT OF MEDICARE REIMBURSEMENT RATES.
• SB00453 - AN ACT REQUIRING THAT HEALTH CARRIERS ASSUME RESPONSIBILITY FOR THE COLLECTION OF OUT-OF-POCKET EXPENSES FOR COVERED BENEFITS.
• SB00454 - AN ACT REQUIRING HEALTH INSURERS TO ALLOW A COVERED PERSON TO TERMINATE COVERAGE AND PROCURE ALTERNATE HEALTH INSURANCE WITHOUT PENALTY WHEN SUCH COVERED PERSON'S HEALTH CARE PROVIDERS ARE DESIGNATED OUT-OF-NETWORK.
• SB00456 - AN ACT CONCERNING HEALTH INSURER LIABILITY FOR DAMAGES AND HARMS CAUSED BY UNDUE DELAY IN AUTHORIZING OR APPROVING CARE.
• SB00765 - AN ACT PROHIBITING HEALTH CARE PROVIDERS FROM REQUIRING PATIENTS TO PROVIDE AN ELECTRONIC PAYMENT METHOD TO BE KEPT ON FILE WITH THE PROVIDER.
• SB00817 - AN ACT PROHIBITING HEALTH INSURERS FROM USING SOFTWARE TOOLS TO AUTOMATICALLY DOWNCODE HEALTH INSURANCE CLAIMS.
• SB00819 - AN ACT REQUIRING SITE-NEUTRAL REIMBURSEMENTS FOR CERTAIN COVERED HEALTH INSURANCE BENEFITS.
• SB00837 - AN ACT CONCERNING OVERSIGHT OF GROUP PRACTICE ACQUISITIONS AND MERGERS.
• SB00844 - AN ACT REVISING THE ELIGIBILITY REQUIREMENTS OF LOAN FORGIVENESS PROGRAMS FOR PHYSICIANS, PHYSICIAN ASSISTANTS AND ADVANCED PRACTICE REGISTERED NURSES TO INCLUDE THOSE EMPLOYED BY FOR-PROFIT HEALTH CARE EMPLOYERS.
• SB01025 - AN ACT PROHIBITING DISCRIMINATION IN THE PROVISION OF HEALTH CARE SERVICES.
• SB01045 - AN ACT CONCERNING SURGERY ON MINORS.
• SB01065 - AN ACT CONCERNING HEALTH CARE PROVIDER CONTINUING MEDICAL EDUCATION ACCREDITATION.
• SB01073 - AN ACT AUTHORIZING RECIPROCAL LICENSURE FOR CERTAIN HEALTH CARE PROVIDERS.
• SB01310 - AN ACT AUTHORIZING HOSPITALS TO INSTALL DEVICES ON AN EXTERIOR WALL OF AN EMERGENCY DEPARTMENT TO FACILITATE THE VOLUNTARY SURRENDER OF INFANTS TO EMERGENCY DEPARTMENT STAFF.
• SB01380 - AN ACT PROHIBITING DISCRIMINATION BY HEALTH CARE PROVIDERS IN THE PROVISION OF HEALTH CARE SERVICES IN THE STATE.
• SB01419 - AN ACT PROHIBITING MEDICAID REIMBURSEMENT FOR HEALTH CARE PROVIDERS WHO INCLUDE TRAINING REPAYMENT AGREEMENT PROVISIONS IN CONTRACTS WITH EMPLOYEES.
• SB01437 - AN ACT CONCERNING REQUESTS FOR HEALTH RECORDS AND THE FEES CHARGED FOR ACCESS TO SUCH RECORDS.
• SB01450 - AN ACT CONCERNING RECRUITMENT AND RETENTION OF THE HEALTH CARE WORKFORCE.
• SB01451 - AN ACT CONCERNING THE RECOMMENDATIONS OF THE WORKING GROUP TO STUDY STAFF SAFETY ISSUES AFFECTING HOME HEALTH CARE AND HOME HEALTH AIDE AGENCIES.
• SB01452 - AN ACT CONCERNING HOSPITAL-AFFILIATED PHYSICIANS.
• SB01479 - AN ACT CONCERNING WITHHOLDING MEDICAID REIMBURSEMENT FOR HEALTH CARE PROVIDERS WHO REQUIRE MANDATORY ARBITRATION IN BILLING DISPUTES.
• SB01481 - AN ACT PROHIBITING DISCRIMINATION IN SERVICES FUNDED UNDER MEDICAID.
• SB01483 - AN ACT CONCERNING THE PATIENT-CENTERED MEDICAL HOME-PLUS PROGRAM.
• SB01507 - AN ACT PROHIBITING PRIVATE EQUITY OWNERSHIP AND CONTROL OF HOSPITALS AND HEALTH SYSTEMS AND THE CONTROLLING OF OR INTERFERENCE WITH THE PROFESSIONAL JUDGMENT AND CLINICAL DECISIONS OF CERTAIN HEALTH CARE PROVIDERS AND REQUIRING AN EVALUATION OF THE APPOINTMENT OF A RECEIVER TO MANAGE HOSPITALS IN FINANCIAL DISTRESS.
• SB01508 - AN ACT CONCERNING MEDICAL RECORDS.
• SB01530 - AN ACT CONCERNING A TECHNICAL CHANGE TO A PROVISION CONCERNING GOVERNMENT ADMINISTRATION AND THE PROVISION OF REPRODUCTIVE AND GENDER-AFFIRMING HEALTH CARE SERVICES TO PATIENTS REGARDLESS OF LOCATION.

  Hospital emergency rooms 

 

• HB06549 - AN ACT AUTHORIZING HOSPITALS TO INSTALL DEVICES ON AN EXTERIOR WALL OF AN EMERGENCY DEPARTMENT TO FACILITATE THE VOLUNTARY SURRENDER OF INFANTS TO EMERGENCY DEPARTMENT STAFF.
• HB06552 - AN ACT AUTHORIZING HOSPITALS TO INSTALL DEVICES ON AN EXTERIOR WALL OF AN EMERGENCY DEPARTMENT TO FACILITATE THE VOLUNTARY SURRENDER OF INFANTS TO EMERGENCY DEPARTMENT STAFF.
• HB06571 - AN ACT REQUIRING HOSPITALS TO POST REAL-TIME EMERGENCY DEPARTMENT WAIT TIMES ON AN INTERNET WEB SITE.
• HB06976 - AN ACT CONCERNING THE DEPARTMENT OF PUBLIC HEALTH'S RECOMMENDATIONS REGARDING HOSPITAL EMERGENCY DEPARTMENT DIVERSION.
• HB07287 - AN ACT CONCERNING THE STATE BUDGET FOR THE BIENNIUM ENDING JUNE 30, 2027, AND MAKING APPROPRIATIONS THEREFOR, AND PROVISIONS RELATED TO REVENUE AND OTHER ITEMS IMPLEMENTING THE STATE BUDGET.
• SB00007 - AN ACT CONCERNING PROTECTIONS FOR ACCESS TO HEALTH CARE AND THE EQUITABLE DELIVERY OF HEALTH CARE SERVICES IN THE STATE.
• SB00487 - AN ACT CONCERNING EMERGENCY DEPARTMENT BOARDING AND CROWDING.
• SB00710 - AN ACT CONCERNING THE REDUCTION OF WAIT TIMES IN HOSPITAL EMERGENCY DEPARTMENTS AND REQUIRING A STUDY OF THE POTENTIAL IMPACTS OF INCREASING MEDICAID REIMBURSEMENT RATES FOR EMERGENCY ROOM VISITS.
• SB01066 - AN ACT CONCERNING EMPLOYMENT CLASSIFICATION OF EMERGENCY DEPARTMENT PHYSICIANS.
• SB01310 - AN ACT AUTHORIZING HOSPITALS TO INSTALL DEVICES ON AN EXTERIOR WALL OF AN EMERGENCY DEPARTMENT TO FACILITATE THE VOLUNTARY SURRENDER OF INFANTS TO EMERGENCY DEPARTMENT STAFF.
• SB01538 - AN ACT CONCERNING EMERGENCY DEPARTMENT BOARDING AND CROWDING.

  Emergency personnel 

 

• HB05034 - AN ACT ESTABLISHING A PERSONAL INCOME TAX DEDUCTION FOR STIPENDS PAID TO CERTAIN VOLUNTEER EMERGENCY PERSONNEL.
• HB05040 - AN ACT INCREASING THE INCOME LIMITS OF THE CONNECTICUT HOUSING FINANCE AUTHORITY'S FIRST-TIME HOME BUYER ASSISTANCE PROGRAMS FOR CERTAIN INDIVIDUALS.
• HB06405 - AN ACT CONCERNING WORKERS' COMPENSATION COVERAGE FOR FIRST RESPONDERS FOR POST-TRAUMATIC STRESS INJURIES.
• HB06671 - AN ACT CONCERNING EMPLOYERS OF COMMUNITY EMERGENCY RESPONSE TEAM MEMBERS.