Proposed S.B. No. 802
Session Year 2025


AN ACT CONCERNING A COMPASSIONATE MEDICAID WAIVER PROGRAM FOR CHILDREN WITH RARE, PROGRESSIVE OR NEURODEGENERATIVE DISORDERS.

To address the urgent needs of the state's critically ill children with rare disorders often leading to a limited life span and ensure equitable access to life-sustaining services and support for families navigating the challenges of such diagnoses.


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